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Dysautonomia International Press Coverage



November 2, 2016 - Lexch.com
Bertrand Teen Living with POTS

October 30, 2016 - St. George News
Get spooked, chilled and thrilled at dysautonomia support group?s haunted house

October 24, 2016 - Mayo Clinic News Network
Living With POTS

October 21, 2016 - Blue Ribbon News
Rockwell Mayor issued Dysautonomia Awareness Month Proclamation

October 14, 2016 - Cuyahoga Falls News Press
Cuyahoga Falls mayor proclaims October Dysautonomia Awareness Month

October 8, 2016 - Erie County Government
Legislature recognizes Dysautonomia Awareness Month

October 7, 2016 - The Daily Star Journal
Missouri governor, mayor declare Dysautonomia Awareness Month

October 7, 2016 - Rocket City Mom
Classic Game Vault for Dysautonomia International

October 6, 2016 - The Epoch Times
October: Dysautonomia Awareness Month

September 28, 2016 - Boone County Connection
St. Charles County / New Melle Issue Dysautonomia Awareness Month Proclamations

September 27, 2016 - Sullivan Independent News
Sullivan Mayor Issues Dysautonomia Awareness Month Proclamation

September 8, 2016 - WBCL 90.3FM
Interview with Dr. Jeffrey Boris, Dysautonomia International 2016 Physician of the Year

August 1, 2016 - US News & World Report
What is POTS and Why Haven't More People Heard of It?

June 23, 2016 - Cosmopolitan
My Constant Exhaustion Turned Out to Be a Symptom of a Serious Illness

June 2, 2016 - SleekSleeves
SleekSleeves Sponsors POTS Walk 2016 that Raises over $75,000 to Support Dysautonomia International

May 10, 2016 - Her Campus
Uncovering and Adjusting to Life with POTS

May 7, 2016 - Connect Bridgeport
BHS Junior Maleehah Saab Shares Experience with POTS - Postural Orthostatic Tachycardia Syndrome

April 4, 2016 - Wicked Local Medford
Dysautonomia International to hold May 7 Medford race to benefit autonomic disorders

April 4, 2016 - St. George News
1 woman, 1 girl talk about their invisible illness: postural orthostatic tachycardia syndrome

January 7, 2016 - Everyday Health
POTS: A Mysterious Syndrome That Can Turn Your Life Upside Down

October 4, 2015 - The Spectrum
Trying to battle the invisible illness dysautonomia

October 1, 2015 - Teen Vogue
How One Girl Is Surviving A Common Yet Mysterious Syndrome That Threatened to Ruin Her Life

August 28, 2015 - Boston News Group: Metro Buzz
Mayor McGlynn declares October, 2015, Dysautonomia Awareness Month in the City of Medford

August 25, 2015 - CBS News Health Watch
A Look At A Mystery Disorders That Mainly Strikes Young Women (Interview with Dysautonomia International Volunteer Wendy Baruchowitz)

August 2015 - University of Toledo Radio
Interview with Dr. Blair Grubb, Dysautonomia International Medical Advisory Board member

August 14, 2015 - Daily Mail
Woman, 21, with debilitating chronic illness that causes 'never-ending nausea' says doctors refused to diagnose her - and even suggested she was 'faking' her symptoms

August 10, 2015 - The Mighty
When Doctors Told Me My Chronic Illness Was "All in My Head"

August 6, 2015 - Vanderbilt University Study Center Reporter
Study tracks postural orthostatic tachycardia syndrome

July 17, 2015 - Health 24
Real life story: living with the rare disease Dysautonomia [Editor's Note: Dysautonomia and POTS are not rare diseases.]

July 18, 2015 - New York Times
Letter to the Editor from Dysautonomia International's President

July 15, 2015 - University of Toledo News
UT Health Doctor Named Physician of the Year by Dysautonomia International

July 13, 2015 - Dysautonomia International Press Release
Dysautonomia International Hosts 3rd Annual Conference in Autonomic Disorders

July 12, 2015 - New York Times
The New Child Abuse Panic

April 2, 2015 - The Tech
Harder Than MIT (written by Dysautonomia International Board member Sarah Mendelowitz)

May 10, 2015 - The Boston Globe
Medford Walk Raises For Little-Known Illness

May 15, 2015 - Medford Transcript
Medford resident increases awareness about POTS

March 17, 2015 - Newsday
Long Island hires and promotions: Natacha T. Pires, Dysautonomia International

March 5, 2015 - Dysautonomia International Press Release
Dysautonomia International Announced New Director of Medical & Public Affairs

February 27, 2015 - Dysautonomia International Press Release
Richmond Resident Explains Life with Rare Disease and Promotes Awareness for Rare Disease Day

February 22, 2015 - New York Times Magazine
Why Couldn't She Stand Up for More Than a Minute

February 12, 2015 - Dysautonomia International Press Release
Dysautonomia International Announces $200,000 Research Grant to Study Often Misdiagnosed Neurological Condition

February 12, 2015 - New York Times
Part II: Think Like A Doctor: Swept Off Her Feet Solved

February 11, 2015 - New York Times
Part I: Think Like A Doctor: Swept Off Her Feet (the Diagnosis column of the NY Times featuring a patient of Medical Advisory Board member Dr. Roy Freeman)

February 11, 2015 - Yuma Sun
Local athlete struggles with dysautonomia

February/March 2015 Issue - Neurology Now
Take A Stand: Web Extras - Learn More About POTS

February/March 2015 Issue - Neurology Now
Take A Stand: A neurologic disorder known as POTS causes dizziness and fainting - and frustration, due to lack of awareness and inadequate treatment. (magazine layout available in PDF)

January 9, 2015 - Cosmopolitan
The Devastating Illness That Doctors Brushed Off as PMS

November 25, 2014 - Northern Neck News
Her fight against dysautonomia: Erin Robertson's seven-year struggle with rare disease

October 29, 2014 - The Charger Bulletin
Dysautonomia Awareness Week

October 28, 2014 - Centre Daily Times
After proper diagnosis, State High freshman overcomes illness, returns to class

October 10, 2014 - Asbury Park Press
Jackson girl faces rare disease, fundraiser planned

October 10, 2014 - Gainesville Sun
Buchholz student seeks to raise awareness for her nervous system condition

October 2, 2014 - PR Web
Ehlers-Danlos National Foundation and Dysautonomia International Initiate Webinar Partnership

September 25, 2014 - Delavan Enterprise
Darien woman aims to raise awareness of syndrome that affects nervous system -
Mayor to proclaim October as Dysautonomia Awareness Month in Delavan

August 16, 2014 - Springfield Sun News
Book documents Northwestern Middle School student's battle with POTS

July 24, 2014 - Vanderbilt University Research News
Team effort boosts study of tachycardia syndrome

July 11, 2014 - Huffington Post
Making Hope When the Medical System Can't

July 11, 2014 - Huffington Post
Invisible Illness: How to Sustain Hope?

July 2, 2014 - Dysautonomia International Press Release
Patients Fund Their Own Research When Federal Funding Falls Through

June 2014 - EmpowHER
Millions Have Dysautonomia, Most Don't Know About It

May 23, 2014 - The State Press
Life with POTS: Business student graduates despite medical challenges (Note - this is about Dysautonomia International Patient Advisory Board member Crista Procopio)

May 20, 2014 - Broadway World
Cyclists to Ride from 850 Miles for MSA and The Multiple System Atrophy Coalition

March 5, 2014 - Ardmoreite.com
Body's Immune Response May Play Role in Rapid Heart Rate

March 4, 2014 - University of Oklahoma Health Sciences Center
Body's Immune Response May Play Role in Rapid Heart Rate

December 22, 2013 - Dysautonomia International Press Release
Dysautonomia International Announces Research Grants

December 6, 2013 - Dysautonomia International Press Release
Fainting Experts Weigh in on Tippy the Fainting Squirrel's Diagnosis

October 31, 2013 - Health Rising
Dysautonomia 101 from Lauren Stiles for Chronic Fatigue Syndrome and Fibromyalgia

October 24, 2013 - Newsday
East Moriches woman draws attention to dysautonomia

October 2013 - The Commercial Appeal
Olive Branch recognizes rare condition of young resident

October 19, 2013 - American Health Lawyers Association Newsletter
Issues in Diagnostic Medicine and Legal Implications for Patients With Rarely Heard of Disorders: Dysautonomia - An Overview written by Dysautonomia International Patient Advisory Co-Chair Amy Krakower, Esq.

September 20, 2013 - Orange County Register
H.B. teen off to Mayo Clinic for help with unusual disorder

September 2013 - Joint Press Release from ResearchMatch and Dysautonomia International Announcing the POTS Research Registry

September 2013 - Montgomery County Road Runners Magazine, Intervals
Interview with Elyse Schwartz

September 8, 2013 - New York Post
Make-A-Wish Fashion Week Dream Come True (a story about Teressa Wright from Dysautonomia International's Patient Advisory Board and her teenaged daughter Sara)

August 20, 2013 - Health Rising
From Chronic Fatigue Syndrome, to Fibromyalgia, to POTS, to Success: One Woman's Journey Through The Medical Profession

July 1, 2013 - Transpersonal Radio
Angela Yendes of Dysautonomia International ? POTS (Postural Orthostatic Tachycardia Syndrome)

February 2013 - Long Island Women's Social Networking Magazine
The Not So Dainty Fainting Lady

December 2012 - The Tide of Moriches Newspaper
New Website Battles Mysterious Illness

November 2012 -The Women's Healing Tree
What on Earth is Dysautonomia?

October 18, 2012 - Buffalo Grove Countryside/Chicago Sun Times
Buffalo Grove aims to carve out a cure

July 9, 2012 - Visalia Delta Times
Childhood at Odds With Disorder

 

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