Dysautonomia International
Learn More
Get Involved
Press Room
About Us

For Patients

For Researchers

For Physicians

For Family and Friends

For Educators

For Employers

Like us on Facebook Like us on Facebook
Connect on Linked-In

Follow us on Twitter:

Home >> Press Room

For press inquiries, please e-mail info@dysautonomiainternational.org.

Dysautonomia International Press Coverage

November 2, 2016 - Lexch.com
Bertrand Teen Living with POTS

October 30, 2016 - St. George News
Get spooked, chilled and thrilled at dysautonomia support group?s haunted house

October 24, 2016 - Mayo Clinic News Network
Living With POTS

October 21, 2016 - Blue Ribbon News
Rockwell Mayor issued Dysautonomia Awareness Month Proclamation

October 14, 2016 - Cuyahoga Falls News Press
Cuyahoga Falls mayor proclaims October Dysautonomia Awareness Month

October 8, 2016 - Erie County Government
Legislature recognizes Dysautonomia Awareness Month

October 7, 2016 - The Daily Star Journal
Missouri governor, mayor declare Dysautonomia Awareness Month

October 7, 2016 - Rocket City Mom
Classic Game Vault for Dysautonomia International

October 6, 2016 - The Epoch Times
October: Dysautonomia Awareness Month

September 28, 2016 - Boone County Connection
St. Charles County / New Melle Issue Dysautonomia Awareness Month Proclamations

September 27, 2016 - Sullivan Independent News
Sullivan Mayor Issues Dysautonomia Awareness Month Proclamation

September 8, 2016 - WBCL 90.3FM
Interview with Dr. Jeffrey Boris, Dysautonomia International 2016 Physician of the Year

August 1, 2016 - US News & World Report
What is POTS and Why Haven't More People Heard of It?

June 23, 2016 - Cosmopolitan
My Constant Exhaustion Turned Out to Be a Symptom of a Serious Illness

June 2, 2016 - SleekSleeves
SleekSleeves Sponsors POTS Walk 2016 that Raises over $75,000 to Support Dysautonomia International

May 10, 2016 - Her Campus
Uncovering and Adjusting to Life with POTS

May 7, 2016 - Connect Bridgeport
BHS Junior Maleehah Saab Shares Experience with POTS - Postural Orthostatic Tachycardia Syndrome

April 4, 2016 - Wicked Local Medford
Dysautonomia International to hold May 7 Medford race to benefit autonomic disorders

April 4, 2016 - St. George News
1 woman, 1 girl talk about their invisible illness: postural orthostatic tachycardia syndrome

January 7, 2016 - Everyday Health
POTS: A Mysterious Syndrome That Can Turn Your Life Upside Down

October 4, 2015 - The Spectrum
Trying to battle the invisible illness dysautonomia

October 1, 2015 - Teen Vogue
How One Girl Is Surviving A Common Yet Mysterious Syndrome That Threatened to Ruin Her Life

August 28, 2015 - Boston News Group: Metro Buzz
Mayor McGlynn declares October, 2015, Dysautonomia Awareness Month in the City of Medford

August 25, 2015 - CBS News Health Watch
A Look At A Mystery Disorders That Mainly Strikes Young Women (Interview with Dysautonomia International Volunteer Wendy Baruchowitz)

August 2015 - University of Toledo Radio
Interview with Dr. Blair Grubb, Dysautonomia International Medical Advisory Board member

August 14, 2015 - Daily Mail
Woman, 21, with debilitating chronic illness that causes 'never-ending nausea' says doctors refused to diagnose her - and even suggested she was 'faking' her symptoms

August 10, 2015 - The Mighty
When Doctors Told Me My Chronic Illness Was "All in My Head"

August 6, 2015 - Vanderbilt University Study Center Reporter
Study tracks postural orthostatic tachycardia syndrome

July 17, 2015 - Health 24
Real life story: living with the rare disease Dysautonomia [Editor's Note: Dysautonomia and POTS are not rare diseases.]

July 18, 2015 - New York Times
Letter to the Editor from Dysautonomia International's President

July 15, 2015 - University of Toledo News
UT Health Doctor Named Physician of the Year by Dysautonomia International

July 13, 2015 - Dysautonomia International Press Release
Dysautonomia International Hosts 3rd Annual Conference in Autonomic Disorders

July 12, 2015 - New York Times
The New Child Abuse Panic

April 2, 2015 - The Tech
Harder Than MIT (written by Dysautonomia International Board member Sarah Mendelowitz)

May 10, 2015 - The Boston Globe
Medford Walk Raises For Little-Known Illness

May 15, 2015 - Medford Transcript
Medford resident increases awareness about POTS

March 17, 2015 - Newsday
Long Island hires and promotions: Natacha T. Pires, Dysautonomia International

March 5, 2015 - Dysautonomia International Press Release
Dysautonomia International Announced New Director of Medical & Public Affairs

February 27, 2015 - Dysautonomia International Press Release
Richmond Resident Explains Life with Rare Disease and Promotes Awareness for Rare Disease Day

February 22, 2015 - New York Times Magazine
Why Couldn't She Stand Up for More Than a Minute

February 12, 2015 - Dysautonomia International Press Release
Dysautonomia International Announces $200,000 Research Grant to Study Often Misdiagnosed Neurological Condition

February 12, 2015 - New York Times
Part II: Think Like A Doctor: Swept Off Her Feet Solved

February 11, 2015 - New York Times
Part I: Think Like A Doctor: Swept Off Her Feet (the Diagnosis column of the NY Times featuring a patient of Medical Advisory Board member Dr. Roy Freeman)

February 11, 2015 - Yuma Sun
Local athlete struggles with dysautonomia

February/March 2015 Issue - Neurology Now
Take A Stand: Web Extras - Learn More About POTS

February/March 2015 Issue - Neurology Now
Take A Stand: A neurologic disorder known as POTS causes dizziness and fainting - and frustration, due to lack of awareness and inadequate treatment. (magazine layout available in PDF)

January 9, 2015 - Cosmopolitan
The Devastating Illness That Doctors Brushed Off as PMS

November 25, 2014 - Northern Neck News
Her fight against dysautonomia: Erin Robertson's seven-year struggle with rare disease

October 29, 2014 - The Charger Bulletin
Dysautonomia Awareness Week

October 28, 2014 - Centre Daily Times
After proper diagnosis, State High freshman overcomes illness, returns to class

October 10, 2014 - Asbury Park Press
Jackson girl faces rare disease, fundraiser planned

October 10, 2014 - Gainesville Sun
Buchholz student seeks to raise awareness for her nervous system condition

October 2, 2014 - PR Web
Ehlers-Danlos National Foundation and Dysautonomia International Initiate Webinar Partnership

September 25, 2014 - Delavan Enterprise
Darien woman aims to raise awareness of syndrome that affects nervous system -
Mayor to proclaim October as Dysautonomia Awareness Month in Delavan

August 16, 2014 - Springfield Sun News
Book documents Northwestern Middle School student's battle with POTS

July 24, 2014 - Vanderbilt University Research News
Team effort boosts study of tachycardia syndrome

July 11, 2014 - Huffington Post
Making Hope When the Medical System Can't

July 11, 2014 - Huffington Post
Invisible Illness: How to Sustain Hope?

July 2, 2014 - Dysautonomia International Press Release
Patients Fund Their Own Research When Federal Funding Falls Through

June 2014 - EmpowHER
Millions Have Dysautonomia, Most Don't Know About It

May 23, 2014 - The State Press
Life with POTS: Business student graduates despite medical challenges (Note - this is about Dysautonomia International Patient Advisory Board member Crista Procopio)

May 20, 2014 - Broadway World
Cyclists to Ride from 850 Miles for MSA and The Multiple System Atrophy Coalition

March 5, 2014 - Ardmoreite.com
Body's Immune Response May Play Role in Rapid Heart Rate

March 4, 2014 - University of Oklahoma Health Sciences Center
Body's Immune Response May Play Role in Rapid Heart Rate

December 22, 2013 - Dysautonomia International Press Release
Dysautonomia International Announces Research Grants

December 6, 2013 - Dysautonomia International Press Release
Fainting Experts Weigh in on Tippy the Fainting Squirrel's Diagnosis

October 31, 2013 - Health Rising
Dysautonomia 101 from Lauren Stiles for Chronic Fatigue Syndrome and Fibromyalgia

October 24, 2013 - Newsday
East Moriches woman draws attention to dysautonomia

October 2013 - The Commercial Appeal
Olive Branch recognizes rare condition of young resident

October 19, 2013 - American Health Lawyers Association Newsletter
Issues in Diagnostic Medicine and Legal Implications for Patients With Rarely Heard of Disorders: Dysautonomia - An Overview written by Dysautonomia International Patient Advisory Co-Chair Amy Krakower, Esq.

September 20, 2013 - Orange County Register
H.B. teen off to Mayo Clinic for help with unusual disorder

September 2013 - Joint Press Release from ResearchMatch and Dysautonomia International Announcing the POTS Research Registry

September 2013 - Montgomery County Road Runners Magazine, Intervals
Interview with Elyse Schwartz

September 8, 2013 - New York Post
Make-A-Wish Fashion Week Dream Come True (a story about Teressa Wright from Dysautonomia International's Patient Advisory Board and her teenaged daughter Sara)

August 20, 2013 - Health Rising
From Chronic Fatigue Syndrome, to Fibromyalgia, to POTS, to Success: One Woman's Journey Through The Medical Profession

July 1, 2013 - Transpersonal Radio
Angela Yendes of Dysautonomia International ? POTS (Postural Orthostatic Tachycardia Syndrome)

February 2013 - Long Island Women's Social Networking Magazine
The Not So Dainty Fainting Lady

December 2012 - The Tide of Moriches Newspaper
New Website Battles Mysterious Illness

November 2012 -The Women's Healing Tree
What on Earth is Dysautonomia?

October 18, 2012 - Buffalo Grove Countryside/Chicago Sun Times
Buffalo Grove aims to carve out a cure

July 9, 2012 - Visalia Delta Times
Childhood at Odds With Disorder


  © Copyright 2012 Dysautonomia InternationalMedical Disclaimer