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Dysautonomia International is pleased to partner with the National Organization for Rare Disorders (NORD) to celebrate Rare\u00a0Disease Day today. \u00a0Did you know that overall, rare diseases are not that\u00a0rare?<\/p>\nDysautonomia International is pleased to partner with the National Organization for Rare Disorders (NORD) to celebrate Rare\u00a0Disease Day today. \u00a0Did you know that overall, rare diseases are not that\u00a0rare?<\/p>\n
1 in 10 Americans has a rare disease. \u00a0That’s over 30 MILLION people, and there are even more people with rare diseases around the world. \u00a0Two thirds of people with rare diseases are children. \u00a0There are over\u00a07,000 identified rare diseases and new diseases\u00a0are\u00a0discovered\u00a0every\u00a0year.<\/p>\n
What is a “rare” disease? What are some examples of rare diseases? Within the realm of autonomic disorders there are several rare diseases such as Autoimmune Autonomic Ganglionopathy<\/a>, Multiple System Atrophy<\/a>, Pure Autonomic Failure<\/a>, Familial Dysautonomia<\/a>, and Dopamine Beta Hydroxylase Deficiency<\/a>.<\/p>\n What are some of the problems experienced by people who have rare diseases?<\/b><\/p>\n What can you do to help? Dysautonomia International is pleased to partner with the National Organization for Rare Disorders (NORD) to celebrate Rare\u00a0Disease Day today. \u00a0Did you know that overall, rare diseases are not that\u00a0rare? 1 in 10 Americans has a rare disease. \u00a0That’s over 30 MILLION people, and there are even more people with rare diseases around the world. \u00a0Two … Continue reading Rare Diseases… Not So Rare<\/span>
\n<\/strong>In the United States, a disease is considered rare if it
\nis\u00a0believed to affect fewer than 200,000 Americans.
\nThe European Union considers\u00a0rare diseases to be
\nthose that impact ![\"Screen](\"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-content\/uploads\/2014\/02\/Screen-shot-2014-02-28-at-1.38.48-PM.png\")
<\/a>fewer than 1 in 2000 individuals. \u00a0Other countries have similar definitions.<\/p>\n
\n<\/strong>Rare diseases are present across the spectrum of medical conditions. \u00a0Most types of cancer are rare diseases. There are also\u00a0rare neurological and neuromuscular diseases,\u00a0metabolic diseases, chromosomal disorders,\u00a0skin diseases, bone and skeletal disorders, and\u00a0rare diseases affecting the heart, blood, lungs,\u00a0kidneys, and other body organs and systems.<\/p>\n\n
\n<\/b>Share this blog post on social media or e-mail today. \u00a0For a list of other easy ideas to help spread the word about Rare Disease Day, you can visit the following websites:
\nU.S. Rare Disease Day website<\/a>
\nGlobal Rare Disease Day website<\/a><\/p>\n<\/a><\/a><\/a><\/a><\/a><\/a><\/a>by <\/span><\/a><\/a><\/a><\/a><\/a><\/a><\/a>by <\/span><\/a>","protected":false},"excerpt":{"rendered":"