{"id":1,"date":"2013-12-28T03:00:54","date_gmt":"2013-12-28T03:00:54","guid":{"rendered":"http:\/\/www.dysautonomiainternational.org\/blog\/wordpress\/?p=1"},"modified":"2014-01-31T00:21:44","modified_gmt":"2014-01-31T05:21:44","slug":"hello2014","status":"publish","type":"post","link":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/hello2014\/","title":{"rendered":"Thanks For The Memories 2013, Hello 2014!"},"content":{"rendered":"

2013 Recap<\/strong>
\n2013 was a year of tremendous growth and many firsts for Dysautonomia International. With the help of hundreds of amazing volunteers and generous donors, we held our first Dysautonomia Lobby Day<\/a> on Capitol Hill (and a\u00a0second lobby day<\/a>), hosted our first\u00a0national conference<\/a>, battled insurance companies that are denying coverage for autonomic testing<\/a>, launched the first\u00a0POTS Research Registry<\/a>, helped researchers recruit patients<\/a> for groundbreaking dysautonomia research projects, presented a patient friendly research update<\/a> from the 24th Symposium on the Autonomic Nervous System, and gave out our first four\u00a0research grants<\/a>. \u00a0Our volunteers also organized the second annual Dysautonomia Awareness Month<\/a> in October, held the second annual Dysautonomia Awareness Tweet-A-Thon<\/a>, increased\u00a0press coverage<\/a>\u00a0on dysautonomia, obtained\u00a0proclamations<\/a> from state and local governments, distributed newly diagnosed patient\u00a0brochures<\/a> to medical offices, and held fundraisers<\/a>, large and small, all year long. \u00a0Of course, we continued to provide patients and caregivers with educational resources<\/a>, videos<\/a>, resources<\/a>, and connections to support groups<\/a>\u00a0that can help make life with dysautonomia a little bit more manageable.<\/p>\n

A New Blog for a New Year<\/strong>
\nWhat better way to kick off the New Year than with another first – our first blog post on our new blog! \u00a0Through this blog, we’ll be bringing you the latest dysautonomia news, events, and research, as well as guests posts from physicians, researchers and other experts.<\/p>\n

When we have a new blog post, we will announce it on our Facebook<\/a> and Twitter<\/a> pages, so be sure to follow us on one or both of those sites. \u00a0The blog will allow us to bring you more in-depth information that just a simple Facebook or Twitter post.<\/p>\n

Our blog team is excited to offer “Dysautonomia Q&A” posts. \u00a0A few times per year, we will reach out to our network of dysautonomia savvy physicians, physical therapists, psychologists, school social workers, lawyers and other experts to answer\u00a010 questions submitted by patients and caregivers. \u00a0The questions can be on any topic related to dysautonomia. \u00a0If you would like to submit a question, please send your question to blog@dysautonomiainternational.org. \u00a0 We will select 10 questions that are applicable to a broad audience of patients, find an expert to answer each question, and publish their response on this blog . \u00a0 If your question is selected, your name and e-mail will not be published.<\/p>\n

Dysautonomia International wishes you all a Happy Healthy New Year! \u00a0We’re looking forward to new adventures in dysautonomia awareness, advocacy, and research in 2014.<\/p>\n\"Facebook\"<\/a>\"twitter\"<\/a>\"linkedin\"<\/a>\"youtube\"<\/a>\"vimeo\"<\/a>\"instagram\"<\/a>\"mail\"<\/a>by <\/span>\"feather\"<\/a>\"Facebook\"<\/a>\"twitter\"<\/a>\"reddit\"<\/a>\"linkedin\"<\/a>\"tumblr\"<\/a>\"mail\"<\/a>by <\/span>\"feather\"<\/a>","protected":false},"excerpt":{"rendered":"

2013 Recap 2013 was a year of tremendous growth and many firsts for Dysautonomia International. With the help of hundreds of amazing volunteers and generous donors, we held our first Dysautonomia Lobby Day on Capitol Hill (and a\u00a0second lobby day), hosted our first\u00a0national conference, battled insurance companies that are denying coverage for autonomic testing, launched … Continue reading Thanks For The Memories 2013, Hello 2014!<\/span> →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2,1],"tags":[],"class_list":["post-1","post","type-post","status-publish","format-standard","hentry","category-dysautonomia-international","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/posts\/1","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/comments?post=1"}],"version-history":[{"count":10,"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/posts\/1\/revisions"}],"predecessor-version":[{"id":85,"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/posts\/1\/revisions\/85"}],"wp:attachment":[{"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/media?parent=1"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/categories?post=1"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dysautonomiainternational.org\/blog\/wordpress\/wp-json\/wp\/v2\/tags?post=1"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}