Meet Charlotte, who has been an active Dysautonomia International volunteer for the past five years. When asked what inspired her to start volunteering for Dysautonomia International Charlotte says, “I was at a place in my life where I just kept getting sicker and I was desperate for a cure and more answers. I thought, I can either get depressed and dwell on the fact that these things don’t exist or I can do my part to create them. Once I saw all of the amazing things that Dysautonomia International had setup, it was a no brainer to get involved and collaborate with others to make a difference.”
With a background in theatre and education, Charlotte wanted to use her skills to create videos that other people in the community could share to educate others and to hear their story told. Charlotte has made several videos used by Dysautonomia International and our community members to raise awareness. Each video tells a different part of the dysautonomia story. “It has been amazing to hear the community react to the videos and to see the impact they have had on other people’s lives.” Here are a few of Charlotte’s fantastic awareness videos, made with the help of Dysautonomia International’s North Carolina Support Group, a group she helped create:
Dukes Up for Dysautonomia Challenge
2018 Dysautonomia Awareness Month Video
Dysautonomia Health Hacks
The Faces of Dysautonomia
Charlotte also started Art with a Heart, an annual family-friendly fundraiser in North Carolina that grows each year. “Being sick can make you feel weak and less than, but when we combine our “spoons”, think creatively, and support each other, we can accomplish incredible things. You matter to our community; so don’t be afraid to jump in and get involved!”
Thank you Charlotte for everything you do for the dysautonomia community. We look forward to seeing what you create next to get people involved in fun, educational awareness projects!
If you’d like to get involved with Dysautonomia International, sign up for our email list to find out about upcoming events, host a birthday or other fundraiser on Facebook, or join a local support group to see what’s going on in your area.
by 
by